Thursday, July 19, 2012

US Loses Psychiatric Beds for Mentally Ill




The following chart is excerpted from  “No Room at the Inn: Trends and Consequences of Closing Public Psychiatric Hospitals 2005-2010” by the Treatment Advocacy Center (http://treatmentadvocacycenter.org)

It compares public hospital beds available for people with mental illness in 2010 vs. 2005; computes the gain or loss; tells how many beds exist per 100,000 residents; and calculates what percent of the minimum beds needed the state has on hand. Based on that percentage, the state is ranked. There is a dramatic shortage of public psychiatric beds in every state. The result is that more people with mental illnesses are being sent to jails, shelters, prisons, and morgues. 


State
Number of psychiatric   beds 2010
Number of   psychiatric beds 2005
Number of   psychiatric beds lost or gained
Percent of psychiatric beds lost or gained
2010 beds/ 100,000 total pop.
Relation to target beds per capita
State Ranking per capita (worst to  to least worst)

Arizona
260
338
-78
-23%
4.1
8%
Tied for Last
Minnesota
206
464
-258
-56%
3.9
8%
Tied for Last
Iowa
149
239
-90
-38%
4.9
10%
48
Michigan
530
1,006
-476
-47%
5.4
11%
47
Arkansas
203
184
19
+10%
7.0
14%
46
Alaska
52
74
-22
-30%
7.3
16%
45
Vermont
52
55
-3
-5%
8.3
17%
44
New Mexico
171
425
-254
-60%
8.3
18%
41
North Carolina
761
1,461
-700
-48%
8.0
18%
41
Ohio
1,058
1,210
-152
-13%
9.2
18%
41
Texas
2,129
2,730
-601
-22%
8.5
19%
40
Rhode Island
108
134
-26
-19%
10.3
20%
37
South Carolina
426
443
-17
-4%
9.2
20%
37
Wisconsin
558
716
-158
-22%
9.8
20%
37
Kentucky
446
646
-200
-31%
10.3
21%
34
Maine
137
166
-29
-17%
10.3
21%
34
Tennessee
616
1,068
-452
-42%
9.7
21%
34
Mass
696
1,015
-319
-31%
10.6
22%
33
Colorado
520
776
-256
-33%
10.3
23%
29
Idaho
155
157
-2
-1%
9.9
23%
29
Illinois
1,429
1,821
-392
-22%
11.1
23%
29
Oklahoma
401
386
15
+4%
10.7
23%
29
Nevada
302
119
183
+153%
11.2
25%
28
Utah
310
329
-19
-6%
11.2
26%
27
Georgia
1,187
1,635
-448
-27%
12.3
27%
26
California
5,283
6,285
-1,002
-16%
14.2
29%
21
Hawaii
182
171
+11
+6%
13.4
29%
21
Indiana
908
1,201
-293
-24%
14.0
29%
23
New Hampshire
189
224
-35
-16%
14.4
29%
23
West Virginia
259
258
-1
0%
14.0
29%
23
Pennsylvania
1,850
2,349
-499
-21%
14.6
30%
20
Washington
1,220
1,170
+50
+4%
18.1
34%
19
Virginia
1,407
1,659
-252
15%
17.6
37%
18
Florida
3,321
2,101
1,220
+58%
17.7
38%
15
Maryland
1,058
1,203
-145
-12%
18.3
38%
15
Nebraska
337
361
-24
-7%
18.5
38%
15
Oregon
700
691
+9
+1%
18.3
39%
14
Louisiana
903
914
-11
-1%
19.9
40%
13
Montana
194
194
0
0%
19.6
42%
12
Connecticut
741
889
-148
-17%
20.7
43%
11
New Jersey
1,922
2,820
-898
-32%
21.9
44%
10
Wyoming
115
122
-7
-6%
20.4
45%
9
Missouri
1,332
1,238
94
+8%
22.2
46%
8
North Dakota
150
164
-14
-9%
22.3
48%
7
Alabama
1,119
1,001
118
+12%
23.4
49%
6
Delaware
209
281
-72
-26%
23.3
51%
4
Kansas
705
594
111
+19%
24.7
51%
4
New York
4,958
5,269
-311
-6%
25.6
52%
3
South Dakota
238
311
-73
-23%
29.2
62%
2
Mississippi
1,156
1,442
-286
-20%
39.0
79%
1
TOTALS
43,318

50,509
-7191

14.1


Wednesday, July 18, 2012

Federal Mental Health Funds Fail To Reach Mentally Ill


Role of Federal Government’s Attempts to Improve Services
for Individuals with Serious Mental Illness
E. Fuller Torrey, MD

(Note: The following shows how various federal funding streams for mental "health" fail to reach people with mental "illness")

1963, Community Mental Health Centers (CMHC) Act:  The passage of this legislation effectively shifted responsibility for funding public mental illness services from the states to the federal government, thus reversing a policy that had existed for more than a century. NIMH paid the new federal funds directly to local Community Mental Health Centers, thus bypassing state governments. Prior to 1963 states were held responsible for the quality of those services; since 1963 nobody claims responsibility. The CMHC Act shifted the main focus of treatment from the state mental hospitals to the new CMHCs, but almost no planning took place regarding follow-up care for the seriously mentally ill patients being discharged from the state hospitals. The 1963 CMHC Act was the beginning of the increase of mentally ill persons becoming homeless, incarcerated in jails and prisons, etc.

1965, Institutions for Mental Diseases Medicaid exclusion: When Medicaid was enacted in 1965 the federal government was afraid that states would use it to cover the costs of mentally ill individuals in state mental hospitals so these hospitals were excluded from Medicaid coverage. This was the Institutions for Mental Diseases (IMD) exclusion. However, since Medicaid did cover these same patients if they were hospitalized on the psychiatric ward of a general hospital or living in nursing homes or group homes, the IMD exclusion created a major incentive for states to empty the state hospitals, thus shifting most state costs to federal Medicaid. States had, and still have little incentive to place patients in appropriate community settings or to follow-up and insure that they receive continuing care; the fiscal reward comes simply from emptying the state hospitals. The IMD exclusion has been the single largest reason why deinstitutionalization has failed so abysmally.
Reference: Geller, J.L. Excluding institutions for mental disease from federal reimbursement for services: strategy or tragedy? Psychiatric Services 2000; 51: 1397-1403.

1986, Protection and Advocacy for Individuals with Mental Illness Act: Under Senator Lowell Weicker’s sponsorship, this legislation set up a federal program to fund independent state agencies to investigate allegations of abuse or neglect of mentally ill or disabled persons residing in mental institutions. Widely referred to as the Protection and Advocacy (P&A) program, it has been administered by the Substance Abuse and Mental Health Services Administration (SAMHSA) under the Department of Health and Human Services. As soon as the P&A program was enacted it was taken over by civil rights ideologues who believed that no mentally ill person, no matter how disabled or psychotic, should even be involuntarily hospitalized or medicated. Thus P&A programs in many states have assumed a function of protecting patients from treatment, rather than insuring that they receive appropriate treatment. The federal government has made no efforts to correct this well-intentioned-program-gone-astray, and in fact SAMHSA has encouraged it. The tragic consequences of the P&A program were highlighted by the Wall Street Journal on August 16, 2008, describing how P&A workers in Maine insisted on the discharge of a psychotic young man from the state hospital despite the objections of the treating physicians and his family; he went home and killed his mother with an axe. Others have described how P&A programs, in clear violation of the law, “have engaged in federally prohibited lobby efforts and how they have tried to defeat proposed legislation, some of which would actually benefit their clients.”
Reference: Peters, AJ. Lawyers who break the law: What Congress can do to prevent mental health patient advocates from violating federal legislation. Oregon Law Review 2010; 89: 133-173.

1990, American with Disabilities Act: Another well-meaning federal program, the American with Disabilities Act (ADA) was an attempt to prohibit discrimination based on disability, which was officially defined as “a physical or mental impairment that substantially limits a major life activity.” Thus under the ADA disabled people could not be discriminated against, for example, in hiring, promotion or termination, and employers were expected to make “reasonable accommodation” for disabled employees. The consequences of the ADA have been exactly the opposite of what was intended. Employers, fearful of endless litigation, simply stopped hiring disabled workers. In recent years the ADA has also been used by the Department of Justice to demand that state psychiatric hospitals discharge patients to live in “the least restrictive alternative” in the community. For example, in April 2011, the Department of Justice sued New Hampshire. In many cases moving patients from a state hospital to a nursing home or a group home in a crime-ridden neighborhood is just as or more restrictive as a state hospital, but the former is regarded as more acceptable to the federal government because the patients are “in the community.”
Reference: Olson, W. Under the ADA, we may all be disabled. Wall Street Journal, May 17, 1999.

1996, Health Insurance Portability and Accountability Act (HIPPA): This was an attempt to protect the privacy of an individuals’ health information and medical records; people who disclose such information without the consent of the individual involved can be fined up to $25,000 per year. HIPPA is widely regarded as having markedly reduced the information available to families as they attempt to get treatment for seriously mentally ill family members. This was recently illustrated by the New York Times Magazine cover story about a man with bipolar disorder. Blatantly psychotic, the family finally got him hospitalized but then was unable to get any information, even that he was in the hospital to which they had had him admitted:
“It took a week just to get the social worker assigned to his case on the phone. Although I had been sitting right next to my father at PESS when he was told where he would be transferred, privacy laws prohibited the nurses at the new facility from even confirming, without his written consent, that he had been admitted. I asked if someone could tell him we called and have him sign a consent form so that we could speak with his doctor or social worker.
Yes, I was told, he would be given a consent form — if he was there, which again they would not confirm or deny.
Eventually one nurse took pity and told us that he had indeed filled out the form but had granted access only to Barack Obama and Duke Ellington.”
Such examples are the rule under HIPPA, not the exception.
Reference: Interlandi, J. Love and commitment: What it takes to put your father away in a mental hospital. New York Times Magazine, June 24, 2012, pp. 26-47.

Thus, almost everything the federal government has attempted to do legislatively has made the problems associated with serious mental illness worse rather than better. And if anyone has any lingering doubts about the ability of the federal government to improve matters, look closely at the federal agency whose official mission is to reduce the “impact of substance abuse and mental illness on America’s communities.” This is the Substance Abuse and Mental Health Services Administration (SAMHSA), a $3.6 billion component of the Department of Health and Human Services. It has 537 federal employees whose average salary is $107,760. Its current three-year plan, a 41,804 word document entitled “Leading Change: A Plan for SAMHSA’s Roles and Actions 2011-2014,” does not even mention schizophrenia or bipolar disorder because, in fact, SAMHSA has no interest in serious mental illnesses. What does interest SAMHSA are producing free coloring books and sticker sets for children, such as their “Mental Well-Being Sticker Sets,” and producing a musical for SAMHSA staff to celebrate World AIDS Day (cost of musical: $83,625). SAMHSA also gives away lots of money. It gives $70,000 a year to organizations in California and Pennsylvania that have lobbied against legislation making it easier to treat seriously mentally ill individuals. And it gives $330,000 a year to an organization in Massachusetts whose director claims that “the covert mission of the mental health system…is social control.” Indeed, SAMHSA has been described as “a federal health agency distinguished by the fact that the health of its clients would improve if it went out of business.”
Reference: Torrey, EF. Bureaucratic insanity: The federal agency that wastes money while undermining public health. National Review, June 20, 2011, pp. 25-26.

Conclusion: The track record of the federal government in its attempts to improve services for individuals with serious mental illnesses is a record of well-intentioned programs which have made the problem worse, not better. Rarely in the history of American government have programs conceived with such good intentions produced such bad results.

Thursday, June 28, 2012

Obamacare & Supreme Court leave mentally ill uninsured


While some are condemning and others applauding the Supreme Court decision on health care reform, the decision leaves in place federally mandated discrimination against people with mental illness. As I pointed out with Mary Zdanowicz in this Washington Post op-ed
For the most severely mentally ill, private insurance is essentially meaningless. Because of their illnesses, most are indigent, and private insurance is a luxury they cannot afford....Medicaid...covers their care, except for a single exception--inpatient care in psychiatric hospitals. The federal government's Institution for Mental Diseases (IMD) exclusion prohibits Medicaid from reimbursing for most individuals who need care in a psychiatric hospital. If you have a disease in your heart, liver or any other organ and need treatment in a hospital, Medicaid contributes. But if you have a disease in your brain and need care in a psychiatric hospital, Medicaid does not.
The ruling by the Supreme Court does not change this. States will continue to declare mentally ill who are hospitalized 'well', and discharge them sicker and quicker into the community while pretending that is humane care. As a result of this, many people with serious mental illness will go shelters, others to jails and prisons, and too many to morgues.

Health Care reform that leaves out the most seriously mentally ill is a national shame.

Wednesday, June 27, 2012

Lynn Shuster: Hero of Mental Illness Advocacy

I once wrote an essay on my hero, Dr. E. Fuller Torrey. Today, it's about another hero: Lynn Shuster. Lynn Shuster (and her partner in crime, Mary Kirkland, who I don't know as well, but admire from afar), were until recently leaders of NAMI/Buffalo. They are so extraordinary that the Buffalo News ran an article on their decision to step down.

Lynn has been my idol ever since I joined the movement (CA 1982) to improve care for the most seriously ill. She was older than me, and different than every other NAMI member. How? Lynn doesn't --as she would say, "take any shit". She makes these bald, impolitic, truthful statements about how horrific the mental illness treatment system. Everyone else was pulling their punches and ignoring the elephant in the room: treatment for the most seriously ill sucked and no one was doing anything about it. And she would reel in horror when others who called themselves 'advocates', tried to say how nice Commissioner so-and-so was. "He could be the nicest man in the world. Our job is to make him do his damn job and give the seriously ill better care!" she would say (usually followed by "sheesh").

I once wrote an article, "NAMI's Delusions: Counterproductive Beliefs Held by Mental Health Advocates" almost entirely based on what Lynn taught me.

Lynn has this ability to focus on the most important issues, even while all other advocates are focusing on feel-good ones. While they were trying to create pretty brochures, Lynn was trying to save psychiatric hospitals. While they were criticizing the lack of "people first" language, she was trying to stop the system from jailing people merely because they had mental illness.
Lynn taught me that being at the table isn't as important as making progress and that the two are often inversely related. In a note about her retirement, she wrote:
Never trust a bureaucrat. It's THEIR money (and power and prestige, it's just our loved one's lives. And we know which comes out on top. "Making nice" makes you feel good, but doesn't result in success. News reporters are our friends. Tell the truth, the REAL truth.... Maintain a sense of humor even in dark days--we all need to laugh. Persevere. Persevere some more.... 
 Lynn (and Mary): You're right. I'm gonna "persevere". I'm gonna start a new Facebook Group called, "Bring Lynn and Mary Out of Retirement".

Friday, June 22, 2012

Mental Health Industry, 2. Mentally Ill, 0.

In New York State the battle to improve care for people with serious mental illness has become increasingly polarized. On the one side, favoring improved care for people with serious mental illness are families of the mentally ill, people with serious mental illness, law enforcement, and the general public. On the other side, is the New York State community-based mental health industry, funded by the New York State Office of Mental Health.

The community-based mental health system won two victories. Earlier this year, they won the battle to close state psychiatric hospitals which only serve the seriously ill. Last week, they had their second success: They preserved cracks in Kendra’s Law that allow them to deny services to people with serious mental illness.

The Kendra’s Law Improvement Act had been proposed by Assembly member Aileen Gunther and State Senator Young. It would have improved the information flow so local mental hygiene directors were made aware of involuntarily committed psychiatric patients and mentally ill prisoners who were being discharged to their jurisdictions. That would have allowed mental health directors to triage the individuals to see they get the right voluntary or Kendra’s Law care to enable them to function in the community.

The mental health directors vigorously opposed Kendra's Law and they were joined by mental health trade associations who feared that if new people with serious mental illness were identified, they would have to treat them rather than being allowed to offload to jails, prisons shelters and morgues. (There are more mentally ill in a single NY jail, Riker’s Island, than all state psychiatric hospitals combined. The opposition to treatment was led by NYAPRS a trade association that has now moved on to lobbying for less medical care for people with serious mental illness (NYAPRS only provides non-medical care).

 As a result of this ‘victory’
  •  Involuntarily committed patients will continue to be released into the community without treatment 
  • Mentally Ill prisoners will continue to be released into the community without treatment 
  • Officials will be allowed to continue to ignore reports of mentally ill persons when those reports come from families 
  • Individuals who do well in Kendra’s Law, will continue to be able to get out from under the court order merely by moving to a different county 
  • Individuals who do well in Kendra’s Law will continue to have their orders expire without a review of whether that is safe or not. 
  • We will have more incidents of violence by and to individuals with serious mental illness like the 90 Preventable Tragedies that might have been prevented had the cracks been closed.
Perhaps Vanessa Bellucci said it best. Her mentally ill brother killed both their parents and that gave her the unique ability to see the issue from both perspectives: the perpetrator's and victim's. In an op-ed she wrote:
As a result of the cracks in Kendra’s Law, my parents are dead and my brother remains in prison, adjudged as being incompetent to stand trial. Perhaps with the proper support from the mental-health system, this all could have been avoided and I could have had parents to give me away at my wedding next year, and my nephew could have had his uncle and grandparents around to watch him grow up. It’s too late for my family, but not too late for others.
The law sunsets in two years. Advocates for improved care will be back to improve Kendra's Law and the community mental health system will come back and defend the status quo.

Wednesday, June 13, 2012

June Update: Mental Illness Around the Country

1. Make Greater Use of Assisted Outpatient Treatment

2. Focus more resources on serious mental “illness” rather than mental “health”

  • National:  Articles by Marvin Ross in Canada, Dr. E. Fuller Torrey in Washington, Carlat Psychiatry Blog, and MIPO, all criticized Robert Whitaker’s, Anatomy of an Epidemic for using pseudo science to make the case that medicines don’t help people with mental illness. Natasha Tracy wrote “Why it’s ignorant to write off psychiatry” And the Lancet published a meta analysis that shows Whitaker is wrong. Meds do work
  • Are we arbitrarily diagnosing people with mental health problems? Asks Pete Earley.
  • AZ may see more mental health resources invested in the community as a result of a recent lawsuit settlement
  • NH: We criticized New Hampshire officials for patting themselves on the back when there are more mentally ill incarcerated than hospitalized in that state.
  • NY As incredible as it sounds, NYAPRS, a trade association of mental health providers in NYS actually started lobbying for less medical treatment for people with serious mental illness.
  • WA: A seriously mentally ill man who was without treatment shot 5 in Seattle and then himself.
  • California is unique in that it has plenty of money as a result of Proposition 63 which funded the mental health services act which is supposed to help people with serious mental illness. Unfortunately county and state officials continue to squander the money.
3. Preserve enough hospital beds so seriously ill can get access

 

4. Change Not Guilty By Reason Of Insanity So it Helps People

5. Reform Involuntary Treatment Laws so they prevent violence, rather than require it In Brief

 

Thursday, June 7, 2012

NYAPRS proposes reducing funding for medical treatment of mentally ill

Medicaid realignment in New York is expected to generate $10 billion in savings over five years and the plan is to spend much of it on medical care for people with serious mental illness. That's good news to everyone except the NYS Assoc. of Psychiatric Rehabilitation Services--the trade association for providers of non-medical services to voluntary mental health patients. In a blog, NYAPRS wrote
(C)oncerns have been raised (about) a general emphasis on medical approaches that provide insufficient attention to expanding rehabilitation, peer support and culturally competent ones.
As if giving medical care to someone is the opposite of cultural competence.

As a result of the lack of medical care more people of color are incarcerated for mental illness than hospitalized. And disproportionately so. That is one reason why Kendra's Law is supported by groups made up almost entirely of people of color, like the local Harlem Alliance on Mental Illness. (Consumers too). Extensive Kendra's Law research shows it helps those enrolled, get well and stay well. Yet the trade association is trying to preserve cracks in Kendra's Law that allow their members to avoid treating people with serious mental illness.

I recognize that the trade-association only provides non-medical rehabilitation services and focuses on mental health not mental illness. And I understand that when you see a bucket of money, you want to divert it to your own members. But many people with schizophrenia need, gulp, medical services. Specifically, symptom amelioration. That is what enables them to reach the point where they can benefit from rehab services. NYAPRS wants to take those medical services away, so the funds can go to their association members. The employees of association members are then urged to also lobby for more money for their members.

What is especially disingenuous is that in an op-ed the trade association, as part of their continuing battle against Kendra's Law (a less restrictive, more humane alternative to incarceration or commitment) recently wrote that instead of Kendra's Law
A better approach is to back new programs designed by the governor’s Medicaid Redesign Team to make our mental-health services more effective.
On the one hand they argue that Medicaid Redesign is going to help the most seriously ill and on the other write they don't want the Medicaid used for medical care.

You can't have it both ways. But that's unlikely to stop them from trying.

Monday, June 4, 2012

New York Needs Kendra's Law: You can help

(May 2012, New York) Kendra's Law allows courts to order a small subset of people with serious mental illness who have a past history of violence to accept treatment as a condition for staying in the community. Kendra's Law has been very successful at keeping patients healthier and preventing needless deterioration to violence. See Kendra's Law op-ed in Albany Times Union.

But Kendra's Law has giant cracks in it that send the most seriously ill to jails, prisons, shelters and morgues. A bipartisan Kendra's Law Improvement Act has been proposed to close the cracks that has wide-ranging support including by NAMI/NYS, NYS Chiefs of Police and many others who want better care for people with mental illness. But it is being vigorously opposed by OMH funded community mental health providers and county mental health directors who don't want to have to treat the most seriously ill. They prefer to cherry-pick the easiest to treat for admission to their programs and bury their head in the sand about the most seriously ill.

Please call Assembly speaker Sheldon Silver at 518-455-3791 and Governor Cuomo at: (518) 474-8390.
Urge them to Pass the Kendra's Law Improvement Act (A 6987) to Close the Cracks In Kendra's Law
We have generated media attention, but not enough calls
This is critical.


The legislative session is coming to an end and Cuomo, Silver and Skelos will be deciding whether or not to help people with mental illness by closing cracks. The NYS mental health industry is lobbying them heavily to preserve the cracks.

Thank you for all you do. Spread the word. Forward to friends.

The media is on our side, but we need more calls:

Op-ed in Today's Albany Times Union
Op-ed in Yesterday's Buffalo News
Editorial in NY Daily News
Op-ed in NY Post by Bill Sponsors
Op-ed in Ithaca Journal:
Letter in Schenectaday Gazette
Op-ed in NY Daily News
Editorial in Staten Island Advance

DJ Jaffe
Executive Director
Mental Illness Policy Org.
http://kendras-law.org